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September 10, 2026European Journal of PediatricsOpen Access

Pediatric palliative care in practice: real-world service utilization and care pathways in a regional Italian health system

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Authors

MGMarco GabrielliGZGiulia ZamagniSPSara Persello

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Overview

Retrospective observational study reveals intensive healthcare utilization and 42.3% specialist coverage in pediatric palliative care, highlighting a need for stronger local community networks.

Key Points

  • To evaluate real-world pediatric palliative care utilization, care pathways, and population-level specialist coverage relative to estimated need in a regional healthcare system.
  • Retrospective observational review of electronic records for pediatric patients (N=91; 159 screened) formally managed by a tertiary pediatric palliative care hub between January 2022 and December 2025.
  • Tracked demographic variables, technological dependency, multidisciplinary service contacts across hospital and home settings, and coverage relative to estimated regional specialist need.
  • Most cohort patients were non-oncologic (n=80), with 29.7% requiring more than three medical devices, a median age of 6 years (IQR 1–12), and an overall mortality rate of 29.7%.
  • Healthcare utilization was high, with a median of 61 visits per patient (IQR 35–97) strongly concentrated at the tertiary hub center.
  • Specialist care reached 42.3% of the estimated regional need, with lower coverage observed in geographically distant local health authorities.

Cite This Study

Gabrielli et al. (2026) studied this question.

synapsesocial.com/papers/6aa27a8e58559d80afc73388https://doi.org/10.1007/s00431-026-07386-4
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