What does this research mean for the field?

For young adults living with epilepsy, everyday self-management requires a continuous negotiation between independence, vulnerability, and social participation, extending beyond mere seizure control. Novelty: ClaimNovelty.INCREMENTAL. Consensus alignment: ConsensusAlignment.NEUTRAL.

What question did this study set out to answer?

To explore how young adults experience and negotiate everyday life and self-management while living with epilepsy.

September 10, 2026Nursing ReportsOpen Access

Keeping Balance on a Moving Platform: A Qualitative Interview Study of Young Adults Living with Epilepsy and Implications for Neurological Nursing

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Authors

JJJanet Froulund Jensen LHLiv Gølnitz Hjorhöy BLBelle Mia Ingerslev Loft

Discussion

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Overview

Qualitative interview study reveals continuous balancing of independence and vulnerability in young adults with epilepsy, highlighting the need for person-centered neurological nursing support.

Key Points

To explore how young adults experience and negotiate everyday life and self-management while living with epilepsy.
Conducted a qualitative exploratory study informed by a hermeneutic approach and reported in accordance with SRQR guidelines.
Recruited 12 young adults aged 18–29 years who completed individual semi-structured virtual interviews.
Analyzed interview transcripts using reflexive thematic analysis to identify patterns across participant accounts.
Identified the central theme 'keeping balance on a moving platform,' reflecting how participants continually reconciled independence with vulnerability amid unpredictable seizures and cognitive challenges.
Found that participants actively utilized familiar digital and non-digital tools to structure daily life, compensate for cognitive difficulties, and sustain safety and social participation.

Cite This Study

Jensen et al. (2026) studied this question.

synapsesocial.com/papers/6aa27c2058559d80afc75c07 https://doi.org/10.3390/nursrep16090329

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September 10, 2026Nursing ReportsOpen Access

Keeping Balance on a Moving Platform: A Qualitative Interview Study of Young Adults Living with Epilepsy and Implications for Neurological Nursing

View Full Paper

Ask AI

Bookmark

Authors

JJJanet Froulund Jensen LHLiv Gølnitz Hjorhöy BLBelle Mia Ingerslev Loft

Discussion

Member takes

Overview

Qualitative interview study reveals continuous balancing of independence and vulnerability in young adults with epilepsy, highlighting the need for person-centered neurological nursing support.

Key Points

To explore how young adults experience and negotiate everyday life and self-management while living with epilepsy.
Conducted a qualitative exploratory study informed by a hermeneutic approach and reported in accordance with SRQR guidelines.
Recruited 12 young adults aged 18–29 years who completed individual semi-structured virtual interviews.
Analyzed interview transcripts using reflexive thematic analysis to identify patterns across participant accounts.
Identified the central theme 'keeping balance on a moving platform,' reflecting how participants continually reconciled independence with vulnerability amid unpredictable seizures and cognitive challenges.
Found that participants actively utilized familiar digital and non-digital tools to structure daily life, compensate for cognitive difficulties, and sustain safety and social participation.

Cite This Study

Jensen et al. (2026) studied this question.

synapsesocial.com/papers/6aa27c2058559d80afc75c07 https://doi.org/10.3390/nursrep16090329

View Full Paper

Ask AI

Bookmark