The subjective experiences of spouse caregivers were qualitatively examined in essays provided spontaneously by 27 spouses of persons with brain injuries These essay data appear to reflect issues most salient to caregivers and ideas that were not adequately tapped by the traditional empirical study of caregiver burden during which these data were provided Some themes present in the data provide support for findings of previous burden research, whereas others represent new areas for further investigation Of particular interest, there emerged among the themes a multifaceted picture of subjective burden highlighting the complexity of this phenomenon.
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Chwalisz et al. (1996) studied this question.
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