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May 7, 2025The Cleft Palate-Craniofacial JournalOpen Access

Psychosocial Support for Australian Families Impacted by Craniosynostosis: A Qualitative Study

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Authors

AOAmanda J. OsbornUnited States Department of the InteriorRRRachel RobertsThe University of AdelaideDDDiana DorstynThe University of Adelaide

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Overview

Qualitative interview study reveals substantial gaps in psychosocial support for parents of children with craniosynostosis, highlighting the necessity of integrated family-centered mental health care.

Key Points

  • Investigate the psychosocial experiences and unmet care needs of parents navigating a pediatric craniosynostosis diagnosis.
  • Conducted 21 online narrative interviews with parents of children diagnosed with syndromic or non-syndromic craniosynostosis in Australia.
  • Analyzed qualitative interview transcripts using reflexive thematic analysis to identify common experiences and care barriers.
  • Identified four primary themes: communication and trust in clinical care, system-level challenges in healthcare processes, reliance on personal support networks, and an absence of formal psychological support.
  • Parents consistently described psychological assistance as missing from their treatment journey and emphasized the need for routine mental health services embedded within family-centered care.

Cite This Study

Osborn et al. (2025) studied this question.

synapsesocial.com/papers/6aa7554d594e09fdf9188bf3https://doi.org/10.1177/10556656251337824
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