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September 14, 2026AutismOpen Access

Surviving to Thriving: A Grounded Theory of Post-Diagnostic Identity Reconstruction in Midlife and Older Autistic Adults

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Authors

JKJennifer KirtonATAngela TodTRTony Ryan

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Overview

Constructivist grounded theory reveals survival and thriving trajectories in older autistic adults, highlighting the need for identity-focused post-diagnostic support.

Key Points

  • To investigate how midlife and older adults make sense of receiving an autism diagnosis later in life and how this process influences post-diagnostic identity reconstruction.
  • Constructivist grounded theory methodology involving iterative coding and constant comparison across 17 semi-structured interviews.
  • Included 14 autistic midlife and older adults aged 50 to 73, with input from an autistic advisory group to ensure analytic reflexivity and credibility.
  • Revealed two primary post-diagnostic trajectories: a 'surviving' pattern marked by deficit-based self-interpretations and self-blame, and a delayed 'thriving' pattern defined by self-compassion, agency, and authentic alignment with autistic identity.
  • Identified the Thriving Cycle, a dynamic and iterative model of three interconnected processes that facilitates progression from diagnostic liminality to an integrated, affirming identity.

Cite This Study

Kirton et al. (2026) studied this question.

synapsesocial.com/papers/6aa7b3fc0926e14a848b372chttps://doi.org/10.1177/13623613261483304
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