What does this research mean for the field?

Creative patient and public involvement (PPI) approaches, such as group poetry and quilt-making, effectively facilitate patient engagement with the contentious concept of frailty and highlight the need for personalized communication that reflects patients' lived experiences. Novelty: ClaimNovelty.METHODOLOGICAL. Consensus alignment: ConsensusAlignment.NEUTRAL.

What question did this study set out to answer?

To assess whether creative patient and public involvement methods, including poetry and quilt-making, can facilitate engagement with contentious frailty terminology and inform clinical communication.

September 15, 2026Health ExpectationsOpen Access

Group Poetry and Quilt‐Making –Creative Public Involvement Approaches to Contentious Concepts in Frailty Research

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Authors

WLWilliam Lammons LALily Arnold SMSarah McMullen

Discussion

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Overview

Qualitative participatory study uncovers patient aversion to frailty terminology in community members, indicating that clinical communication requires personalized and culturally sensitive framing.

Key Points

To assess whether creative patient and public involvement methods, including poetry and quilt-making, can facilitate engagement with contentious frailty terminology and inform clinical communication.
Conducted 3 creative patient and public involvement workshops, consisting of two blackout poetry writing sessions and one quilt-making activity.
Recruited N=22 participants via NIHR Applied Research Collaborations networks and a South Asian community organization, co-designing and co-delivering activities with public collaborators.
Utilized qualitative thematic reflections to analyze participant feedback, creative outputs, and their application to the Electronic Frailty Index 2 (eFI2) study.
Workshops directly influenced the eFI2 project topic guide and analytical approach while producing creative media, including two poems and a finished quilt image.
Qualitative analysis highlighted persistent negative reactions to 'frailty' as a diagnostic label, emphasizing the need for individualized, compassionate communication amid existing healthcare system constraints.

Cite This Study

Lammons et al. (2026) studied this question.

synapsesocial.com/papers/6aa913609013453be30a139a https://doi.org/10.1111/hex.70872

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September 15, 2026Health ExpectationsOpen Access

Group Poetry and Quilt‐Making –Creative Public Involvement Approaches to Contentious Concepts in Frailty Research

View Full Paper

Ask AI

Bookmark

Authors

WLWilliam Lammons LALily Arnold SMSarah McMullen

Discussion

Member takes

Overview

Qualitative participatory study uncovers patient aversion to frailty terminology in community members, indicating that clinical communication requires personalized and culturally sensitive framing.

Key Points

To assess whether creative patient and public involvement methods, including poetry and quilt-making, can facilitate engagement with contentious frailty terminology and inform clinical communication.
Conducted 3 creative patient and public involvement workshops, consisting of two blackout poetry writing sessions and one quilt-making activity.
Recruited N=22 participants via NIHR Applied Research Collaborations networks and a South Asian community organization, co-designing and co-delivering activities with public collaborators.
Utilized qualitative thematic reflections to analyze participant feedback, creative outputs, and their application to the Electronic Frailty Index 2 (eFI2) study.
Workshops directly influenced the eFI2 project topic guide and analytical approach while producing creative media, including two poems and a finished quilt image.
Qualitative analysis highlighted persistent negative reactions to 'frailty' as a diagnostic label, emphasizing the need for individualized, compassionate communication amid existing healthcare system constraints.

Cite This Study

Lammons et al. (2026) studied this question.

synapsesocial.com/papers/6aa913609013453be30a139a https://doi.org/10.1111/hex.70872

View Full Paper

Ask AI

Bookmark