Patient and caregiver burden after hospitalization with severe viral lower respiratory tract disease: results from a real-world survey in Europe, the US and Japan

OBJECTIVE: To describe the care planning, post-discharge health and health-related quality of life in severe viral lower respiratory tract disease (LRTD) patients and their caregivers. METHODS: Data were derived from the Adelphi Real World LRTD Disease Specific Programme, a cross-sectional survey of physicians, patients hospitalized with LRTD 6-24 months prior to survey and their caregivers, conducted in in France, Germany, Italy, Spain, United Kingdom, the United States, and Japan in 2024. RESULTS: = 104) reported a moderate-to-severe impact of caring on their physical health, and 50.0% reported moderate-to-extreme impact on their sleep. Mean WHO-5 wellbeing score was 58.5 ± 24.8, Zarit Burden Interview score was 15.0 ± 10.2. Caregiver work impairment was 27.8 ± 27.3%, with an overall activity impairment of 31.9 ± 28.2%. CONCLUSION: Patients and their caregivers continue to experience notable physical and mental health burdens following hospitalization for LRTD, with impacts on HRQoL, wellbeing, and productivity. Our data highlights the need for more adequate care adequate support for patients and caregivers after discharge.