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The aim of the Ostomy Life Study was to get a better understanding of the challenges that people living with a stoma face in their everyday livee. With more than 4000 participants from 11 countries, the study provides a wealth of information covering all age groups, stoma types, stoma products and a variety of cultures. The result shows that the majority of ostomates have issues related to leakage and ballooning which, among other things, have a negative effect on sleep, or lead to unplanned appliance changes for approximately 40% of the respondents. Two-piece users are concerned specifically about coupling failure and the associated consequences. The results can be used to provide guidance in everyday stoma care and in development of new products.
Claessens et al. (Tue,) studied this question.