Mp23-16 the Impact of Pelvic Floor Disorders, Treatment Awareness and Preference Among Minority Women—a Focus Group Analysis

You have accessJournal of UrologyUrodynamics/Lower Urinary Tract Dysfunction/Female Pelvic Medicine: Female Incontinence (MP23)1 May 2024MP23-16 THE IMPACT OF PELVIC FLOOR DISORDERS, TREATMENT AWARENESS AND PREFERENCE AMONG MINORITY WOMEN—A FOCUS GROUP ANALYSIS Manish Narasimman, Greeshma Venigalla, Sanjana Satish, Alan Wein, Katherine Amin, and Raveen Syan Manish NarasimmanManish Narasimman , Greeshma VenigallaGreeshma Venigalla , Sanjana SatishSanjana Satish , Alan WeinAlan Wein , Katherine AminKatherine Amin , and Raveen SyanRaveen Syan View All Author Informationhttps://doi.org/10.1097/01.JU.0001008776.99097.8a.16AboutPDF ToolsAdd to favoritesDownload CitationsTrack CitationsPermissionsReprints ShareFacebookLinked InTwitterEmail Abstract INTRODUCTION AND OBJECTIVE: Pelvic Floor Disorders (PFDs) impact nearly 1 in 4 women in the US, with significant effect on quality of life. However, few studies have investigated the symptom burden on underrepresented ethnic groups and their knowledge and perspectives on PFD treatments. To better understand these areas, we used focus group analysis of ethnically diverse patient populations in Miami, Florida. METHODS: Four focus groups of Hispanic English-speaking (HE), Hispanic Spanish-speaking (HS), and African American (AA) women were conducted at the Desai Sethi Urology Institute in Miami, Florida. The HE group (n=2) and AA group (n=4) were conducted in English. Two HS groups (n=7) were conducted in Spanish. Moderators asked participants questions regarding knowledge of PFDs, symptom burden, and treatment seeking and experiences. Transcripts were independently analyzed and coded by authors. Themes and subthemes from focus groups were developed after discussion and consensus by the authors. RESULTS: Focus group analysis produced 6 broad themes, incorporating 19 subthemes supported by specific patient quotations. Major points derived from focus groups related to PFD symptoms were as follows: (1) urinary incontinence and pelvic organ prolapse symptoms were extremely bothersome; (2) sex life and social life were significantly impacted; (3) urinary incontinence (UI) affected ability to work; (4) most patients could distinguish between stress and urge UI. Key points related to treatment were: (1) patients were largely unaware of treatments for PFDs; (2) while there were different preferences for surgical vs medical treatment, participants were overwhelmingly interested in treatment overall; (3) most patients who underwent prior treatment reported success. CONCLUSIONS: This study of Hispanic and African American focus groups in Miami, FL increases our understanding of PFD symptom burden, treatment awareness, and treatment seeking in ethnically diverse patient populations. While PFD symptoms were found to have significant social and daily living impacts, lack of understanding of underlying PFD etiology and awareness of treatment options may be inhibiting treatment seeking attitudes. There is opportunity to provide higher quality of care to these patient populations if treatment awareness can be improved. Source of Funding: Dr. Syan's AUA Research Scholar Grant 2021 © 2024 by American Urological Association Education and Research, Inc.FiguresReferencesRelatedDetails Volume 211Issue 5SMay 2024Page: e388 Advertisement Copyright & Permissions© 2024 by American Urological Association Education and Research, Inc.Metrics Author Information Manish Narasimman More articles by this author Greeshma Venigalla More articles by this author Sanjana Satish More articles by this author Alan Wein More articles by this author Katherine Amin More articles by this author Raveen Syan More articles by this author Expand All Advertisement PDF downloadLoading ...