We used a participatory co-design approach to improve healthcare transitions for youth with sickle cell disease (SCD). The key outcome was the development of an accredited digital educational module for healthcare providers. Lessons learned included the following: 1) Responsive design should be shaped by lived experience, not predetermined solutions; 2) Participant backgrounds influence intervention outcomes; 3) Provider education is a key strategy to address systemic challenges; 4) Provider-focused interventions should still prioritise patient needs; and 5) Collaboration is essential for impact and dissemination. The insights gained when addressing SCD care and transition experiences may be useful when designing interventions for other complex healthcare challenges.
Noorloos et al. (Sun,) studied this question.