Introduction and Objective: Millions of caregivers support adults with diabetes, yet many caregivers have substantial unmet needs and lack adequate support. While significant resources support parents of children with diabetes, support for caregivers of adults with diabetes remains largely overlooked. Our project aimed to characterize their unique caregiver experience. Methods: The caregiver survey, a modified version of the Kingston Caregiver Stress Scale Assessment Form, was distributed to 7,560 adults with diabetes seen in one academic center. The survey collected responses from patients and their caregivers (if applicable). Results: We received 388 patient responses (44 reported having caregivers) and 27 caregiver responses, with 12 caring for adults over 19. Most caregivers reported spending at least 20 hours/week on caregiving. Figure 1 illustrates caregiver roles, impactful technology, ongoing resource needs, and self-reported burnout. Most caregivers felt overburdened, but their greater concern was often the future care needs of their loved ones. Conclusion: This pilot highlights the unmet need for caregiver-inclusive support and education in adult diabetes care. Caregivers manage tasks, including glucose monitoring, medications, technology, and care coordination, and identify the need for more education, resources and support. Disclosure J. Chippior: None. J. Wyckoff: None. M.C. Dwyer-White: None. C. Dallas: None. L. Ang: None.
CHIPPIOR et al. (Fri,) studied this question.