Objective To examine and synthesize qualitative evidence on the experiences of older community-based caregivers of people living with dementia, guiding public health initiatives that address caregiving needs as a central priority in aging societies. Methods Systematic search using online databases (Medline, PsycINFO, Google Scholar) for peer-reviewed literature published in the last 10 years. We used an iterative approach to extract qualitative data, perform thematic analysis, and conduct quality appraisal using CASP criteria. To translate synthesized insights into policy recommendations, we embedded this study within a community-based case study, co-designed with local stakeholders. Results 845 articles were identified for screening with 24 full text articles included in the analytic sample. Three key themes related to structural barriers, emotional impact, and caregiver identity were identified describing the multifaceted impact of caregiving on caregivers' lives. Conclusions Caregiving experiences are shaped by complex structural limitations. Public health systems must recognize caregivers as essential to the healthcare continuum and invest in community-based support sustaining their capacity.
Galinsky et al. (Thu,) studied this question.
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