Development and validation of an ICF-aligned patient- and proxy-reported outcome measure and derivation of a short form for children and adolescents with disabilities

Key Points

• The aim is to develop and validate a patient- and proxy-reported outcome measure aligned with the ICF for children with disabilities.
• Developed a 59-item P/PR-ROM measuring various clinical domains.
• Conducted psychometric evaluations to assess reliability and validity.
• Derived a 14-item short form to ease response burden while maintaining key outcomes.
• The 59-item measure shows strong psychometric properties across six latent factors.
• The 14-item short form maintains high reliability and validity in assessing 10 clinical domains.
• The short form significantly reduces burden for respondents.