The family engagement in research course: impact on family engagement in neurodevelopmental disability and child health research two years later

Key Points

• This research aims to evaluate the long-term impact of the Family Engagement in Research Course on participant engagement in neurodevelopmental disability and child health research.
• Implemented a Family Engagement in Research Course (FER Course) for families and researchers
• Assessed the engagement level of families in research after two years
• Collected feedback from course participants on their experiences and changes in involvement
• Increased engagement levels among family members in neurodevelopmental disability research
• Sustained involvement of families in child health research two years post-training
• Participants reported higher confidence in contributing to research discussions