Policy Forum examines medical security gaps for rare diseases in Zhejiang Province, suggesting improvements for equitable coverage.
Key Points
The main aim is to analyze the development of medical security policies for rare diseases in Zhejiang Province and derive lessons for broader applications.
Examined the evolution of rare disease medical security policies from 2015 to 2025 in Zhejiang Province.
Utilized the multiple streams framework to interpret policy dynamics.
Identified key institutional and administrative factors influencing policy-making.
Highlighted the need for layering policies beyond basic medical insurance for sustainable coverage.
Demonstrated that local governments can innovate policy within existing institutional constraints.
Showed that targeted compensation for non-NRDL drugs can improve access to treatments while ensuring fiscal sustainability.