What question did this study set out to answer?

The main aim is to analyze the development of medical security policies for rare diseases in Zhejiang Province and derive lessons for broader applications.

April 24, 2026Intractable & Rare Diseases ResearchOpen Access

Policy lessons regarding medical security for rare diseases in China: Insights from Zhejiang Province through the multiple streams framework

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Authors

MWM WangShanghai Children's Medical Center CRChuan RongShanghai Children's Medical Center PWPingyang WangZhejiang Academy of Medical Sciences

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Implication

Policy Forum examines medical security gaps for rare diseases in Zhejiang Province, suggesting improvements for equitable coverage.

Key Points

The main aim is to analyze the development of medical security policies for rare diseases in Zhejiang Province and derive lessons for broader applications.
Examined the evolution of rare disease medical security policies from 2015 to 2025 in Zhejiang Province.
Utilized the multiple streams framework to interpret policy dynamics.
Identified key institutional and administrative factors influencing policy-making.
Highlighted the need for layering policies beyond basic medical insurance for sustainable coverage.
Demonstrated that local governments can innovate policy within existing institutional constraints.
Showed that targeted compensation for non-NRDL drugs can improve access to treatments while ensuring fiscal sustainability.

Cite This Study

Wang et al. (2026) studied this question.

synapsesocial.com/papers/69eb084f553a5433e34b35bf https://doi.org/10.5582/irdr.2026.01001

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Policy lessons regarding medical security for rare diseases in China: Insights from Zhejiang Province through the multiple streams framework

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Implication

Key Points

Cite This Study

Policy lessons regarding medical security for rare diseases in China: Insights from Zhejiang Province through the multiple streams framework

Discussion

Member takes

Implication

Key Points

Cite This Study

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