Mp54-16 Engaging Black Women in Stress Urinary Incontinence Research Prioritization Through Intentional Recruitment and Partnership With Community Partners

You have accessJournal of UrologyDiversity, Equity & Inclusion: Increasing Representation in Urology (MP54)1 May 2024MP54-16 ENGAGING BLACK WOMEN IN STRESS URINARY INCONTINENCE RESEARCH PRIORITIZATION THROUGH INTENTIONAL RECRUITMENT AND PARTNERSHIP WITH COMMUNITY PARTNERS Rachel Pozzar, Shazia Rangwala, Shanelle Wilson, Donna Deng, Steven Gregg, Donna Berry, and Una Lee Rachel PozzarRachel Pozzar , Shazia RangwalaShazia Rangwala , Shanelle WilsonShanelle Wilson , Donna DengDonna Deng , Steven GreggSteven Gregg , Donna BerryDonna Berry , and Una LeeUna Lee View All Author Informationhttps://doi.org/10.1097/01.JU.0001008944.36895.9d.16AboutPDF ToolsAdd to favoritesDownload CitationsTrack CitationsPermissionsReprints ShareFacebookLinked InTwitterEmail Abstract INTRODUCTION AND OBJECTIVE: Black women are underrepresented in clinical trials and research in stress urinary incontinence (SUI). This lack of representation contributes to a health care system that may fail to understand the needs of Black women with SUI. In our initial efforts to engage women with SUI, we noted low engagement of Black women. To improve representation, we designed a purposeful recruitment plan to engage Black women in the subsequent patient engagement activities. The objective of this study is to share our learnings on intentional recruitment and improving diversity for research. METHODS: Our first survey, a crowdsource survey, was posted on a national bladder advocacy website. Black women with SUI were underrepresented in our first survey sample. In order to promote meaningful participation by Black women in the following 3 research phases, a series of activities were conducted. (1) We formed a collaboration with Black Health Matters (BHM) and Black doctors, and obtained input from Black patients. (2) A series of newsletter articles were written on topics including why research participation by Black women is critical to advancing care. These articles were distributed to the BHM community with a call to action including a link to our surveys. (3) We continued to work with BMH and the Black community, building trust and maintaining transparency of our mutual goals. (4) A patient partner network was formed of women who received research training and were interested in further engagement activities. RESULTS: For the crowdsourcing survey, the representation of Black women was 16/ 258 (6%). After outreach efforts, the representation of Black women increased to 67/168 (40%), 24/100 (24%), and 41/ 249 (16%) for the next 3 phases, respectively (Table 1). A SUI patient partner network (n=100) was established, with 24/100 (24%) patient partners identifying as Black women. CONCLUSIONS: Black women representation in our patient engagement project on SUI research prioritization was improved through intentional and collaborative outreach. Education, relationship-building, mutual trust and transparency were essential in partnering with community organizations, clinicians, and patients. These efforts led to results in which Black women's voices and viewpoints were represented. Source of Funding: Patient-Centered Outcomes Research Institute (PCORI) Award 21347-BRIVM © 2024 by American Urological Association Education and Research, Inc.FiguresReferencesRelatedDetails Volume 211Issue 5SMay 2024Page: e882 Advertisement Copyright & Permissions© 2024 by American Urological Association Education and Research, Inc.Metrics Author Information Rachel Pozzar More articles by this author Shazia Rangwala More articles by this author Shanelle Wilson More articles by this author Donna Deng More articles by this author Steven Gregg More articles by this author Donna Berry More articles by this author Una Lee More articles by this author Expand All Advertisement PDF downloadLoading ...