ME Association

Recent papers from ME Association

1. The development and psychometric evaluation of the Post Activity Symptom Scale (PASS) for Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome.2026
2. Development and psychometric evaluation of the Severity of Myalgic Encephalomyelitis Scale (SoMES) and the Myalgic Encephalomyelitis Occupational Status Scale (MEOSS)2026
3. Reflective Reappraisal and Coping Among Long-term Amyotrophic Lateral Sclerosis Family CaregiversHome Health Care Management & Practice · 2026
4. Understanding pain in women with polyendocrine metabolic ovarian syndrome: health risks and treatment effectivenesseLife · 2026
5. Exploratory Associations Between Multimodal MRI-Derived Features and Neurological Symptoms in Wolfram Syndrome: A Spanish Cohort Pilot StudyDiagnostics · 2026
6. Translation, cross-cultural adaptation, and validation of the Jugendwerk Dysphagia Emotion and Family Assessment (JDEFA) in PersianApplied Neuropsychology Adult · 2026
7. Testosterone reference ranges in women, adolescent girls, and children: the 2024 PCOS Challenge-CDC stakeholder meetingThe Journal of Clinical Endocrinology & Metabolism · 2026
8. Beyond the test: employee perspectives on the characteristics of drug checking servicesDrugs Habits and Social Policy · 2026
9. Letter of Concern About Ruuska et al. From 4 April 2026Acta Paediatrica · 2026
10. Changing Dimensions in Agriculture and Home Economics: Impacts on Cooperative Extension AdministrationJournal of Extension · 1963
11. fNIRS estimates prefrontal cortex activation following glucose load in youths with obesityJournal of Endocrinological Investigation · 2026
12. Qualitative Exploration of the Psychological Impact of Discovering Klinefelter Syndrome/XXY During Infertility Evaluation: A Case SeriesFertility & Reproduction · 2026
13. Pregnancy and Peripartum Multidisciplinary Management in Wolfram Syndrome Type 1: A Case ReportDiagnostics · 2026
14. Rethinking risk: genetic discrimination and children’s right to participate in researchFACETS · 2026
15. Initial report from the SAR-TRACK (SELNET) registry: a multicentric international retrospective analysis on the quality of the management of limb and trunk wall soft-tissue sarcomas (2012–2022) in Ibero-American countriesThe Lancet Regional Health - Americas · 2026
16. A novel patient-Centered approach to clinical trial readiness in rare diseases: Application in Aicardi-Goutières Syndrome (AGS)Molecular Genetics and Metabolism · 2026
17. ‘I want to know what I’m taking’—long-term evaluation of the drug checking service in Slovenia and its integration into drug policyDrugs Education Prevention and Policy · 2026
18. ENDO-ERN Expert Opinion: Addressing the Endocrine Needs in Considering Genital Surgery in Disorders/Differences in Sex Development (DSD) Individuals in EuropeEuropean Journal of Endocrinology · 2026
19. Phenotype Correlations of Neurological Manifestations in Wolfram Syndrome: Predictive Modeling in a Spanish CohortDiagnostics · 2025
20. Reflections on the Quality of Life of Adults with Down Syndrome from an International CongressDisabilities · 2025