Lessons learned from implementing a Culturally Tailored Virtual Support Program for Asian American Breast Cancer Survivors with Pain and Depression: A discussion paper (Preprint)

BACKGROUND Breast cancer is the most diagnosed cancer among women in the U.S., with a greater increase in incidence among Asian American women than among others. Despite having resided in the U.S. for decades, Asian American breast cancer survivors face unique cultural challenges, including stigma and reluctance to disclose their illness. OBJECTIVE This study aimed to discuss practical issues encountered in implementing a culturally tailored, technology-based program aimed at reducing pain and depressive symptoms in Asian American breast cancer survivors. METHODS This study was analyzed using simple content analysis based on meeting minutes and research diaries from the parent study to identify themes related to practical issues in conducting a culturally tailored, technology-based intervention among Asian American breast cancer survivors with pain and depressive symptoms. RESULTS Key issues identified include (a) reluctance to disclose; (b) variability in engagement, based on disease status; (c) need for personalized support; and (d) intra-ethnic differences related to various factors. CONCLUSIONS Suggestions for future research include (a) tailoring communication to participants’ preferences while building trust over time, (b) applying flexible care strategies, (c) assessing individual needs early and adapting materials based on feedback, (d) matching participants with interventionists according to language and level of acculturation, and (e) respecting differences in cultural identities between ethnic subgroups. Addressing these challenges can improve the effectiveness of technology-based interventions for racial/ethnic minority groups CLINICALTRIAL ClinicalTrials.gov NCT06085313; https://clinicaltrials.gov/study/NCT06085313