August 7, 2025Open Access

Patient-Generated Health Data Elements: Developing a Data Model for Preference-Sensitive Conditions

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Research uncovers essential patient-generated health data in epilepsy and multiple sclerosis, highlighting the role of healthcare professionals.

Patient-generated health data is critical for effective shared decision-making in conditions like multiple sclerosis and epilepsy.
Patients with multiple sclerosis and epilepsy consider various types of generated health data important for care decisions.
Digital health services can enhance the sharing of patient-generated health data, but engagement from healthcare professionals is necessary.
There is a need for better recognition of the value of patient-generated health data in healthcare settings.

Vahteristo et al. (2025) studied this question.

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Research uncovers essential patient-generated health data in epilepsy and multiple sclerosis, highlighting the role of healthcare professionals.