Patient-Contributed Data and Medication Safety: A Study on Self-Reporting Behaviors Among Patients with Cancer

Understanding cancer patients' experiences with medication safety events at home is crucial due to their impact on health outcomes. However, patients often face barriers to sharing this information with their clinicians. This study identified key factors influencing cancer patients' self-reporting behaviors through a mixed-methods approach, analyzing survey and interview data from 41 patients diagnosed with breast, lung, prostate, or colorectal cancer. Logistic regression analysis identified predictors such as beliefs about medication and perceived system usability, achieving an AUC of 0.85. Thematic analysis indicated that patients were more likely to report safety events when medications disrupted their daily routines, with perceived severity as the key trigger. System usability and relationships with clinicians also affected reporting behaviors. Our findings highlight the need for user-friendly reporting systems and supportive communication to improve patient engagement and medication safety, offering valuable insights for designing patient-centered reporting systems to facilitate patient-contributed data.