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August 15, 2025Orphanet Journal of Rare DiseasesOpen Access

Genetic self-counselors in Tunisia: the role of health education in hemoglobinopathies prevention among high school students

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Authors

FMFoued MaaouiIMImen MoumniFAFrance Arboix-Calas

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Overview

Survey shows low genetic literacy and screening awareness among high school students in Tunisia, suggesting urgent need for improved health education.

Key Points

  • Low genetic literacy levels hinder effective self-counseling for hemoglobinopathies in high school students, and education must be enhanced.
  • Survey analysis reveals high school students' lack of understanding about hereditary origins and diagnostic techniques for hemoglobinopathies.
  • Data indicates science students are more aware of genetic risks and preventive measures compared to their literary peers, urging tailored educational interventions.
  • Statistical comparisons show significant differences in preventive intentions between students from scientific and literary backgrounds, indicating educational disparities.

Cite This Study

Maaoui et al. (2025) studied this question.

synapsesocial.com/papers/68a365600a429f797332b49fhttps://doi.org/10.1186/s13023-025-03958-z
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Also Consider

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  4. 4Haematologists as Genetic Counsellors for Haemoglobinopathies: Are They Prepared?2025
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