Quality of Life and Sleep Among Parents of Children With Autism Spectrum Disorder in Medina

Introduction: Autism spectrum disorder (ASD) is a common and prevalent neurodevelopmental condition. While the impact of ASD on the child's well-being is well-documented, there has been limited research on the impact of caring for an autistic child on the sleep patterns and quality of life (QoL) of parents and caregivers. This cross-sectional study aimed to investigate the effects of having an autistic child on the QoL and sleep patterns of parents and caregivers in Medina, Saudi Arabia. Methods: The study used validated questionnaires to assess sleep quality and QoL, with a sample of 89 participants. The questionnaire was distributed among parents and caregivers of autistic children at local healthcare centers. Result: The study revealed that the majority of respondents are mothers (70.8%), with children aged 5-7 years being the most common (39.3%), and 67.4% of children are males. Speech problems (47.2%) are the most prevalent issue among autistic children, followed by sleep disorders (20.2%), while a significant portion of parents experience anxiety symptoms (10.1%), depression symptoms (4.5%), and co-occurrence of depression and anxiety symptoms, seen in 5.6% of cases. Parents and caregivers of autistic children experienced moderate levels of sleep disturbance, as indicated by a mean Pittsburgh Sleep Quality Index (PSQI) score of 6.74 ± standard deviation 2.89, with 44.9% of respondents reporting not feeling rested. Conclusion: The analysis of sleep quality and QoL measures highlighted significant challenges faced by the participants, emphasizing the need for comprehensive support strategies to address the well-being of families affected.