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August 21, 2025Science

Disrupting the biospecimen “treasure trove”: Practice, precedent, and future directions

Leslie E. Wolf Samantha Kench Marielle Gross

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Key Points

Decentralized biobanking promotes individual access to biological specimens and data ownership, enhancing transparency.
This approach supports a democratization of data ownership in biobanking, allowing more equitable access.
Practices in decentralized biobanking highlight significant shifts towards engagement with individuals and their specimens.
Implications involve a potential reformation of biobanking norms and future strategies for ethical data use.

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Abstract

Decentralized biobanking can reconnect individuals to their specimens, democratizing data ownership

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Cite This Study

Wolf et al. (2025) studied this question.

synapsesocial.com/papers/68af5210ad7bf08b1ead951d https://doi.org/10.1126/science.adw8337

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