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September 10, 2025Evidence & PolicyOpen Access

Disability lived experience and expertise: recognising the expert contributions of people with disability

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Authors

SCShane CliftonECEmma CooperJBJohn A. Bourke

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Overview

This article highlights the distinction between disability lived experience and lived expertise, suggesting new pathways for inclusion.

Key Points

  • The article emphasizes the importance of recognizing the expert contributions of disabled people in research and advocacy.
  • It points out that current interpretations of lived experience often lead to tokenism and overlook the depth of knowledge in disability lived expertise.
  • The authors propose a distinction that aims to validate the expertise of disabled individuals while still valuing their lived experiences.
  • By acknowledging disability lived expertise, this work seeks to challenge ableist structures and promote more meaningful inclusion.

Cite This Study

Clifton et al. (2025) studied this question.

synapsesocial.com/papers/68c19f9154b1d3bfb60dafffhttps://doi.org/10.1332/17442648y2025d000000060
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1A framework for disability lived expertise.2025
  2. 2Toward an inclusive (crip)epistemology: Exploring the experiences of researchers with lived experience of disability in health research2026
  3. 3Engaging communities in public health practice: lived experience or lived expertise?2026
  4. 4Toward Disability-Led Evaluation: A Continuum Framework for Centering Disability in Evaluation Practice2026
  5. 5Expertise or representation: What gives people with lived experience authority and legitimacy in involvement in research?2026