Communication and end-of-life care in dementia: insights from a close family member working in healthcare

There is very little documented evidence on the experiences of healthcare professionals caring for their own family outside of their role. This article explores the differences in the care received as the author shares her perspectives of caring for her mother, who was diagnosed with dementia. The author reflects on the care received and the impact of communication, as well as the ethical limitations of caring for a member of her own family. Significant references to communication barriers already exist within the literature, relating to end-of-life conversations. The presence of a relative who has a healthcare background may further impact the communication approach of healthcare professionals. Communication barriers also influence conversations about future care needs and preferences, including access to advance care planning, specialist palliative care and anticipatory medications, which may be difficult to access for patients with a non-cancer diagnosis such as dementia. While they may be challenging, effective and empathic end-of-life conversations open up patient choices, prevent inappropriate palliative care and may even impact the bereavement process.