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September 10, 2025Amyotrophic Lateral Sclerosis and Frontotemporal DegenerationOpen Access

Research access barriers in amyotrophic lateral sclerosis

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Authors

EGElisa GiacomelliESErica SciroccoMHMax P. Higgins

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Overview

This report highlights key challenges and strategies to improve clinical research in ALS, indicating the need for increased engagement.

Key Points

  • Addressing participation barriers is crucial for advancing ALS research and improving treatment outcomes.
  • Education and engagement among ALS patients and their families improve participation in clinical studies.
  • Practical strategies like decentralized trial models enhance accessibility and participation opportunities.
  • Strengthening partnerships among stakeholders can align research efforts with community needs in ALS.

Cite This Study

Giacomelli et al. (2025) studied this question.

synapsesocial.com/papers/68c1a5eb54b1d3bfb60df69dhttps://doi.org/10.1080/21678421.2025.2539900
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