A blueprint for creating an early-onset colorectal cancer program based on experiences from seven clinical centers across the United States and Canada

Background The incidence of individuals diagnosed with colorectal cancer under the age of 50, often referred to as early onset colorectal cancer (EOCRC), has risen worldwide. The EOCRC patients have unique needs however, there are no clear guidelines on how to address them. The objective of the present study was to propose a blueprint for EOCRC program development and implementation. Materials and Methods A consensual qualitative design was used to frame the present study. Seven leaders of North American EOCRC centers were invited to devise a stepwise blueprint for developing and implementing EOCRC programs. Discussions were transcribed and conceptually organized into a framework. An analysis of documents detailing and describing the services offered within each centre was as well conducted. Results The analysis was organized around two domains: (a) the rationale underlying the creation of EOCRC programs, and (b) the lessons learned from developing and implementing EOCRC programs. Participants agreed that as the EOCRC programs represent innovative initiatives, a program manager who closely monitors the program is core to successful implementation. Conclusion This study outlines a 10 step actionable guideline for developing and implementing EOCRC programs aiming at addressing the unmet needs of this growing population. Implications for Practice The rising incidence of EOCRC calls for specialized programs tailored to respond to the unique medical and non-medical needs of this population. The proposed blueprint, made of 10steps detailing resources, challenges, opportunities, and actions leading to a successful EOCRC program development and implementation, was meant to contribute to this process.