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September 10, 2025Research EthicsOpen Access

“Should researchers return individual pharmacogenomics results to participants? ” A descriptive qualitative study on stakeholder perspectives involved in HIV/AIDS research and treatment in Uganda

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Authors

SNSylvia NabukenyaDKDavid KyaddondoATAdelline Twimukye

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Overview

Descriptive qualitative study reveals stakeholders' perspectives on returning individual pharmacogenomics results in HIV, highlighting ethical implications and logistical challenges.

Key Points

  • Stakeholders acknowledge the ethical importance of returning individual pharmacogenomics results to participants.
  • Interviews reveal challenges such as low literacy levels and potential stigma surrounding genetic information.
  • Qualitative analysis conducted through 54 interviews and focus groups across five HIV research institutions.
  • Effective communication and national guidelines are essential to ensure safe return of results to vulnerable populations.

Cite This Study

Nabukenya et al. (2025) studied this question.

synapsesocial.com/papers/68c1dd9b54b1d3bfb60fc110https://doi.org/10.1177/17470161251367780
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