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September 16, 2025Best Practice & Research Clinical Endocrinology & MetabolismOpen Access

Assessment of patient-centered outcomes in young children with differences of sex development

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Authors

SASalma AliXTXanthippi TseretopoulouDSDavid E. Sandberg

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Overview

Assessment of patient-reported outcomes and psychosocial well-being in young children with DSD, highlighting barriers to effective implementation.

Key Points

  • Integrating patient-reported outcome measures into care can improve health-related quality of life for children with DSD.
  • Recent studies validate condition-specific questionnaires for young children with DSD, showing strong psychometric properties.
  • Barriers such as cultural sensitivity and respondent burden hinder the effective implementation of patient-reported outcomes.
  • Regular assessments with validated PROMs can support holistic care and enhance shared decision-making for families dealing with DSD.

Cite This Study

Ali et al. (2025) studied this question.

synapsesocial.com/papers/68d4538731b076d99fa58a23https://doi.org/10.1016/j.beem.2025.102030
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