A cross-sectional study of associations between stroke survivors’ disability and caregiver burden dimensions

Caregivers of stroke survivors, mostly spouses, experience significant strain. This study examined the associations between stroke survivors' disabilities and their spouses' psychological health and caregiver reactions. Six months post-stroke, we recruited four groups (30 dyads each) based on the stroke survivors' disabilities at inclusion. A total of 118 dyads were included. Survivors were assessed using the Barthel Index, Mini-mental State, and modified Rankin Score. Groups included: No disability, Physical disability (Barthel Index ≤ 90), Cognitive disability (Mini-mental state ≤ 23), and Cognitive and Physical disability. Spouses were assessed using the Comprehensive Psychopathological Rating Scale-Self-Affective and the Caregiver Reaction Assessment Scale, which includes Disrupted schedule, Lack of family support, Health problems, Financial problems, and Self-esteem. Any disability was associated with Disrupted schedule, Lack of family support, and Health problems. There were no significant differences between groups in the Self-esteem dimension. Physical disability, alone or combined with cognitive disability, was associated with Financial problems, whereas cognitive disability alone was not. An adjusted logistic regression model showed caregiver depression was significantly associated with Disrupted schedule, Lack of family support, and Health problems. Six months post-stroke, any disability and caregiveŕs possible depression are associated with Disrupted schedule, Lack of family support, and Health problems among spouses of stroke survivors. Early rehabilitation should be provided to maximize stroke survivors' functioning and minimize caregiver burden. Additionally, families should receive social support to help mitigate these challenges.