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September 29, 2025Brain ImpairmentOpen Access

The emotional journey through the stages of primary progressive aphasia: seven co-produced care pathway recommendations for clinical practice

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Authors

AVAnna VolkmerUniversity College London Hospitals NHS Foundation Trust YBYin Boll MDMark DibbenUniversity of Tasmania

Discussion

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Implication

Co-produced recommendations aim to improve care for individuals with primary progressive aphasia, highlighting the role of speech therapy and timely support access.

Key Points

Seven care pathway recommendations emerged to meet the needs of people with primary progressive aphasia and their families.
Using World Café methods, participants expressed concerns about the lack of awareness surrounding primary progressive aphasia and access to timely care.
The emotional responses captured from care partners provided valuable insights into navigating the six stages of primary progressive aphasia.
Future research must prioritize collaboration with affected individuals to effectively address their needs and improve care practices.

Cite This Study

Volkmer et al. (2025) studied this question.

synapsesocial.com/papers/68da58dcc1728099cfd112f6 https://doi.org/10.1071/ib25013

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Implication

Co-produced recommendations aim to improve care for individuals with primary progressive aphasia, highlighting the role of speech therapy and timely support access.

The emotional journey through the stages of primary progressive aphasia: seven co-produced care pathway recommendations for clinical practice

Discussion

Member takes

Implication

Key Points

Cite This Study

The emotional journey through the stages of primary progressive aphasia: seven co-produced care pathway recommendations for clinical practice

Discussion

Member takes

Implication

Key Points

Cite This Study

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