“A new pace of life”: A mixed-methods exploration of retirement plans, preparations and experiences in middle-aged and older autistic and non-autistic adults

Abstract Background Retirement is a major life change affecting routines, finances, and wellbeing. Autistic adults may face extra challenges during this transition due to employment barriers, limited support, and planning difficulties. However, little is known about their retirement experiences compared to non-autistic adults. Methods This mixed-methods study surveyed 517 adults from the UK (autistic n = 395), aged 40–90 years, about their retirement status, plans, experiences, employment history, income, and financial security. Results Actual or expected retirement ages were similar across groups, but autistic adults were less likely to have made plans and more likely to have plans disrupted by financial, health, or personal factors. They also reported lower rates of full-time work, reduced pensions, and lower pre-retirement income. Many highlighted a lack of information about pensions and lifestyle planning. Concerns included isolation, loss of routine, and financial worries, but some looked forward to more autonomy and time for self-care, leisure activities and interests. Conclusions While there were many similarities between the autistic and non-autistic groups, our study found that autistic adults may reach retirement differently due to unique work histories, health needs, and planning barriers. Tailored, accessible support is needed to help autistic adults plan for financial stability and meaningful post-retirement lives.