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September 29, 2025ERJ Open ResearchOpen Access

The COCOS-IPF Core Outcome Set for IPF/PPF Care: A Mixed-Method Multi-Perspective Approach

Sofie Breuls Vivien Somogyi Silja Schenk Nur Töreyin Steve Jones Liam Galvin Jeanette Boyd Thomy Tonia Anouk Delameillieure Liesbet Van Bulck Ömer Faruk Dadaş Nesrin Moğulkoç Nikola Stenzel Michael Kreuter Wim Wuyts Fabienne Dobbels

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Key Points

The final core outcome set includes 17 essential outcomes relevant for IPF/PPF care and intervention research.
A modified Delphi study with three rounds involved 110, 78, and 66 participants, including patients and caregivers from 14 European countries.
The process involved scoring outcomes on a 9-point Likert scale and consensus discussions among diverse healthcare stakeholders.
This core outcome set could enhance standardization in IPF/PPF care, improving patient management and future research directions.

Implication

Mixed-methods approach identifies essential outcomes for idiopathic pulmonary fibrosis and progressive pulmonary fibrosis care, suggesting standardized measures.

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Cite This Study

Breuls et al. (2025) studied this question.

synapsesocial.com/papers/68dc261d8a7d58c25ebb29a5 https://doi.org/10.1183/23120541.00872-2025

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Keep reading

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