Co-design of an intervention to enhance healthcare transition for adolescents and young adults with chronic medical conditions

Adolescents and young adults (AYAs) with chronic health conditions must transition from paediatric to adult healthcare systems, yet many face significant challenges during this process. This qualitative study explored mechanisms influencing healthcare transition and examined components of a novel intervention—Transition Compass—featuring automated messaging, access to a transition nurse coordinator, and educational modules. Data were collected via individual interviews ( n = 15), AYA-parent dyadic interviews ( n = 4), and focus groups ( n = 15) with AYAs, parents/carers, and healthcare professionals ( n = 89) across five Australian states. Key factors affecting transition success included AYAs’ evolving autonomy, variable expectations and knowledge across stakeholders, communication gaps, disconnects between healthcare systems, and inconsistencies in care. Participants viewed Transition Compass as a promising strategy to support AYAs through this critical phase.