Cross-sectional study reveals significant gaps in rheumatologists' knowledge of welfare systems and home care.
Objectives To assess rheumatologists’ awareness of social insurance, welfare systems, and home medical care for rheumatoid arthritis (RA) patients in Japan. Methods An anonymous, web-based questionnaire was distributed to 5 128 members of the Japan College of Rheumatology between April 11–30, 2024. The survey covered demographics, knowledge of support systems, and attitudes toward home medical care. Results A total of 478 rheumatologists responded (response rate 9.3%). While over 80% had some understanding of the High-Cost Medical Expense Benefit and Long-Term Care Insurance systems, knowledge of the Disability Pension and long-term care facility characteristics was limited. About 73% reported facing difficulties in patient support due to insufficient knowledge. Medical Social Workers played a central role in providing patient support; however, their availability was limited in smaller clinics. Although 95.3% of respondents recognized the growing need for home medical care, only 24.5% had practical experience. Major concerns included the lack of RA expertise among physicians caring for patients living at home and challenges in medication management after care transition. Conclusions Despite recognizing the importance of integrating social support and medical care, significant gaps remain in rheumatologists’ knowledge and engagement, especially in home care settings. Educational and systemic improvements are needed.
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Matsui et al. (2025) studied this question.
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