The purpose of this study is to explore the influence of chronic disease in children and adolescents who are affected by thalassemia major, as well as the behavioral and emotional functioning during their confrontation with the disease. Participants in this study are subjects of age (6-14 years old), the subjects are patients in pediatric ward of Tirana University Hospital Center (QSUT).Thalassemia major is one of the common monogenic hereditary hemoglobin disorders. It results from the absence of a beta-globin chain in the pathway of hemoglobin production. It is now a global public health concern due to changing demographics. The prevalence rate is 1.5% worldwide.[1] Children with chronic illnesses face several challenges that affect them directly. The child or adolescent with a chronic illness sooner or later faces the knowledge that his conditioning has a prolonged course and that he will be under the effect of this conditioning.
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Face-Kreka et al. (2024) studied this question.
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