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Abstract Background Chronic diseases are a significant source of physical, emotional, mental, and social distress to patients, caregivers, and healthcare professionals (HCPs). In particular, cancer patients face immense challenges as they navigate their uncertain futures. These difficulties necessitate a collaborative environment where patients, caregivers, and HCPs support each other to improve everyone’s quality of life. This study aims to investigate factors that influence a healthy long-term care relationship between patients and HCPs. Methods This qualitative study analyzes the experiences of the HCPs with patients and their caregivers at a large metropolitan academic medical center. Twenty-two de-identified reflective essays written by HCPs as part of the Pacemakers initiative at the medical center, which seeks to empower HCPs, patients, and caregivers in creative ways along the management journey were analyzed. The essays describe meaningful experiences, such as patient/caregiver award ceremonies celebrating resilience and hope. Essays ( N = 22) were thematically analyzed by two independent coders to identify key codes and themes (italicized). Results The presence of support networks ( n = 10) was crucial for patients and caregivers. Conveying solidarity ( n = 21) helped patients experience companionship with their medical team, family, and friends. Small acts of kindness ( n = 10) led to meaningful interactions that encouraged patients. Compassion ( n = 19) and patient-centeredness ( n = 17) fostered a receptive environment where patients and caregivers felt heard. Celebrating and honoring the resilience ( n = 10) of the patients made them feel recognized, and this process of celebration was also found to bolster a renewed sense of purpose for the HCPs ( n = 11). Conclusion The results highlight the importance of holistic support for patients and their caregivers. Creative encouragement empowers both patients and HCPs, building trust and strengthening the pursuit of their health. This mutual care fosters an environment conducive to healing and recovery. This study offers insights into effectively supporting patients and HCPs in long-term care relationships.
Chung et al. (Fri,) studied this question.