Factors leading to high healthcare utilization among individuals with spina bifida (SB) are multifold and interrelated. These include sequelae of congenital medical issues, such as neurogenic bladder and bowel1; complications related to treatment of these issues (e.g. urinary catheter or ventriculoperitoneal shunt problems)1; high medical complexity requiring specialty care2; cognitive challenges that may limit self-care3; and medical systems that do not offer comprehensive, coordinated care to adults with disabilities2.
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Fernandez et al. (2024) studied this question.
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