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August 9, 2024Indian Journal of Child HealthOpen Access

A study on awareness among parents with beta thalassemia major children in government district hospital, Kalaburagi

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Authors

SDSharanabasappa S. DhanwadkarGulbarga UniversityARAshwini G. RayeeGulbarga UniversityHSH SandeepWater Research Institute

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Implication

Assessment using a questionnaire reveals limited awareness of prevention and screening among parents of children with beta thalassemia major, highlighting the need for systematic genetic counselling.

Key Points

  • Parents of children with beta thalassemia major showed substantial gaps in preventive knowledge, and none understood the disorder before their first child was born.
  • Premarital screening was unknown to 75.4% of participants, and only 43.1% received genetic counselling despite managing children requiring frequent blood transfusion.
  • Assessment using a semi-structured pre-validated questionnaire highlights critical gaps in preventive practices, calling for routine prenatal diagnosis and caregiver education.

Cite This Study

Dhanwadkar et al. (2024) studied this question.

synapsesocial.com/papers/68e5cdc0b6db643587564752https://doi.org/10.32677/ijch.v11i6.4730
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1A Study On Parental Knowledge And Management Of Beta Thalassemia In Transfusion-Dependent Children2025
  2. 2Awareness among Parents and Relatives of Beta-Thalassemia Major Patients Regarding Prenatal Diagnosis and Premarital Screening2026
  3. 3Knowledge, attitude, and practices of beta thalassemia: a cross-sectional study among young adults in Delhi-NCR, India2025 · 4 citations
  4. 4Effect of parental knowledge on their thalassemia status and the time of diagnosis of their offspring in Kurunegala, Kandy, and Gampaha Districts.2025
  5. 5Level of knowledge and awareness among parents regarding the care of children with thalassaemia2024