Establishing user centre design in developing a lung cancer self- management digital platform: Protocol Paper

Abstract Lung cancer exemplifies a significant global health challenge, characterised by pronounced mortality rates. An escalating incidence of new cases worldwide, coupled with comparatively diminished survival rates, distinguishes it from other prevalent malignancies. Physical activity can alleviate symptoms of breathlessness, cough, and depression, while also enhancing well-being in individuals with lung cancer. However, resources to support self-management through physical activity and exercise are limited. Our team proposes an innovative solution: a digital self-management platform designed for individuals with lung cancer. This paper reports on a protocol for the co-development of an exercise focused digital self-management platform. The principal objective of this platform is to offer people living with lung cancer an alternative approach to accessing relevant support to manage their health more independently, thereby fostering a more self-reliant approach to physical health self-management. The platform offers users with a secure internet connection, an individually tailored exercise plan, with features that facilitate the ongoing monitoring of their progress. Furthermore, the platform offers relevant guidance to users by directing them toward pertinent resources as required. The protocol describes a procedural framework for the platform's development and sets out a comprehensive strategy for the iterative co-development of the app with key stakeholders; lung cancer patients/survivors and their carers, health care professionals and other key decision makers. The platform's development is rooted in a user-centred, coproduction approach, aimed at accommodating the intricate demands of the targeted patient demographic and enhancing their overall physical functioning and wellbeing outcomes. A mixed methods study design is employed to collect both qualitative and quantitative data throughout the study.