Objectives The objective of this study is to assess the impact of implementing BEST (Brain Early skills test) software and the Geniuslane Parents support app in five Child Development Centres (CDCs) in Northern India. We aim to evaluate how these digital health technologies enhance early intervention and support for children with Neurodevelopmental impairments or Neurodiversity, ultimately improving their developmental outcomes while reducing the associated costs. Methods The study implemented a multi-faceted approach to support children with Neurodevelopmental impairments or Neurodiversity. Following diagnosis, parents received a parenting course and access to the Geniuslane Parents support app. Staff monitored app usage. Children were enrolled in Geniuslane school post-parenting course completion. All children underwent regular Geniuslane BEST assessments, evaluating Early Years Foundation skills, behaviour, Parental stress index, sleep, and diet every two months. Parents received tailored video guidance based on their child's assessment. They were encouraged to record interactions and activities, sharing them with the CDC for feedback. A dedicated TV app offered classes and activities targeting each child's specific challenges. Ongoing assessments tracked progress, with program adjustments made until achieving desired skills by age six. Results In the study conducted from July 2021 to July 2023, a total of 542 children were assessed. Of these, 72% were under the age of 5. The primary diagnoses were as follows: 51% with Autism, 15% with Cerebral Palsy, and 12% with Intellectual disability. Diagram 1 illustrates the average Early Years Foundation Skills (EYFS) over time. Initially, 60% of children had EYFS less than 12 months, but this reduced to 18% after 12 months and 10% after 24 months. Notably, 9% of children reached an EYFS of 48 months, which improved to 20% in 12 months and 33% in 24 months. Moreover, behavioural improvements were observed in 64% of children after 12 months and in 80% after 24 months. Parental-related stress decreased in 73% of cases, and sleep improved in 76% of children. Remarkably, 30% of the children successfully integrated into mainstream school setups without requiring additional provisions, as depicted in Diagram 2. Conclusion The implementation of digital tools, including the BEST software and the Geniuslane Parents support app, has successfully digitalized the post-diagnosis support process at Child Development Centres (CDCs). This innovative approach acknowledges the critical role that parents and schools play in supporting children with Neurodevelopmental impairments or Neurodiversity during their early years. The positive outcomes observed in this study demonstrate the potential of these digital resources to enhance the development, behaviour, and overall well-being of children facing such challenges. References Bharat R, Uzaina U, Yadav T, Niranjan S, Kurade P. mHealth apps delivering early intervention to support parents of children with autism: a scoping review protocol. BMJ Paediatr Open. 2022 May;6(1) doi: 10.1136/bmjpo-2021-001358. PMID: 36053590; PMCID: PMC9062798. Bharat R, Uzaina, Yadav T, Niranjan S, Kurade P. mHealth apps delivering early intervention to support parents of children with autism spectrum disorder: a scoping review. Indian Pediatr. 2023 Mar 15;60(3):224–230. Epub 2023 Feb 20. PMID: 36814125.
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