Perceptions of people with Parkinson’s on non-motor symptoms and functional ability

Parkinson’s is the fastest-growing neurological disorder worldwide, exhibiting motor and non-motor symptoms. The condition impacts individuals at multiple levels with both motor and non-motor symptoms (NMS). This study qualitatively explored perceptions of people with Parkinson’s (PwP), NMS, and functional ability. Ten PwP took part in semi-structured phone or Zoom interviews. Data were analysed using the General Inductive Approach. Four major themes were identified: (a) diagnosis as a turning point; (b) nonmotor symptoms and functional ability; (c) self-management; and (d) significant others. The themes were further classified into 13 subthemes and 10 categories. Interaction between the four themes also emerged from the data. A complex nuanced impact was found on the relationships between the individual and their significant others. People with Parkinson’s experienced either a “vicious cycle” or a “virtuous cycle” of symptoms, which were dependent on a multitude of factors, for example, whether it is a “good” or “bad” day and the corresponding actions taken on these days. The findings provide key insights into tailoring advice and support into self-management of Parkinson’s, particularly of actions that can be taken for better outcomes.