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July 1, 2024Journal of Social Work in End-of-Life & Palliative CareOpen Access

“They Make the Will, But They Want the Food:” Staff Perspectives on Challenges in Implementing Dementia Advance Directives Related to Stopping Feeding

Meredith Levine Mercedes Bern‐Klug

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Abstract

Keywords: Moral injurynursing homestopping eating and drinking by advance directive (SED by AD)voluntary stopping eating and drinking (VSED)

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Levine et al. (2024) studied this question.

synapsesocial.com/papers/68e61de3b6db6435875af971 https://doi.org/10.1080/15524256.2024.2365368

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Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

1New VSED Advance Directive — Progress, but Problems PersistReview · 2025 · 1 citations
2Advance directives for oral feeding in dementia: a response to Shelton and Geppert2024 · 1 citations
3New VSED Advance Directive: Improved Documentation to Avoid Late-Stage Dementia2025 · 2 citations
4Minimal Comfort Feeding in Advanced Dementia in the U.S.: Social Work Perspectives and Practice ImplicationsOriginal Research · 2026
5Navigating resistive behavior that adversely affects the intake of food and fluids in people living with dementia: A multiple case studyCohort Study · 2026

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Carers’ Perspective on Voluntary Stopping of Eating and Drinking: A Systematic Mixed-Methods Review of Motives and Attitudes2025
Optimal Care in the Management of Eating Difficulties in Patients with Dementia2024
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