Context: Witnessing the chronic suffering of children with neuromuscular and other life-limiting illnesses is disheartening. A targeted and concentrated approach could enhance the quality of life for these children and their families, who are frequently overlooked by healthcare practitioners. The goal: This practice of "reflective learning" aims to heighten the focus and awareness of the plight of these suffering children, emphasizing the critical necessity for a personalized and family-centered approach to their care. Implications: This reflective experience underscores the significance of integrating palliative care education into the nursing curriculum, thereby empowering nurses with continuous education on palliative care and enhancing access to pediatric palliative care services for children and families. Conclusion: Incorporating palliative care in the ongoing care of children with chronic suffering can improve the quality of life for all involved.
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Itteera et al. (2024) studied this question.
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