June 6, 2024Journal of Genetic Counseling

A qualitative study of Black breast cancer previvors' and survivors' experiences after positive genetic testing

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Authors

MSMalika SudColumbia University Irving Medical Center ESErika StallingsPatient Advocate Foundation CWCatharine WangBoston University

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Implication

Qualitative study reveals barriers to care and evolving coping strategies in Black breast cancer previvors and survivors, highlighting critical unmet needs across the cancer care continuum.

Key Points

Barriers including medical racism, misinformed clinicians, and limited representation impede Black women carrying a pathogenic variant after genetic testing.
Semi-structured interviews with 16 participants revealed five major themes regarding healthcare agency, systemic barriers, and coping across cancer care.
Highlights the need for culturally informed clinical support and targeted interventions to address disparities in hereditary breast cancer outcomes.

Cite This Study

Sud et al. (2024) studied this question.

synapsesocial.com/papers/68e65e37b6db6435875eccc1 https://doi.org/10.1002/jgc4.1929

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Implication

Qualitative study reveals barriers to care and evolving coping strategies in Black breast cancer previvors and survivors, highlighting critical unmet needs across the cancer care continuum.

A qualitative study of Black breast cancer previvors' and survivors' experiences after positive genetic testing

Discussion

Member takes

Implication

Key Points

Cite This Study

A qualitative study of Black breast cancer previvors' and survivors' experiences after positive genetic testing

Discussion

Member takes

Implication

Key Points

Cite This Study

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