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October 8, 2025Health and Quality of Life OutcomesOpen Access

Quality of life among individuals with profound intellectual and multiple disabilities: crossed perspectives of institutional caregivers and parents

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Authors

KBKarine BaumstarckIHIlyes HamoudaNINicolas Iline

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Overview

This observational analysis compares quality of life assessments from caregivers and parents of individuals with profound intellectual disabilities, suggesting complementary insights.

Key Points

  • Quality of life assessments revealed caregivers rated QoL lower than parents, indicating differing perspectives.
  • Caregivers rated overall QoL at 58 ± 16 while parents rated it at 63 ± 15, highlighting significant discrepancies.
  • Comparative analyses included 335 caregiver assessments and 144 parent assessments, emphasizing the necessity of both views.
  • Results suggest caregiver ratings are influenced by clinical severity, whereas parent views focus more on social factors.

Cite This Study

Baumstarck et al. (2025) studied this question.

synapsesocial.com/papers/68e6679587ecc93a24d17437https://doi.org/10.1186/s12955-025-02434-3
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Psychometric Evaluation of the Turkish Version of a Questionnaire to Measure the Quality of Life of Individuals with Profound Multiple Disabilities2026
  2. 2Multidimensional Analysis of Parent-Perceived Quality of Life in Children with Cerebral Palsy: A Cross-Sectional Study2026
  3. 3Quality of life in the people with disability: individual’s perception2024
  4. 4Comparing Caregivers’ Perspectives on the Health-related Quality of Life of Children With Cerebral Palsy2026
  5. 5Quality of life predictors for individuals with intellectual disability: Cross-sectional proxy-report data from a multicentre study2025