“My Story is Not a Pink Story”: Enabling Care in a Research-Creation Practice with Parents of a Disabled Child in Inclusive Trajectories

With growing attention to including parents and eliciting their voices in the inclusive journey of their children, this paper discusses a process of research-creation. With examples of parents making podcasts about meaningful moments and feltness/felting, we explore parents' positions and development of strategies in creating inclusive childhoods for their children with disabilities. Our investigation showed how storytelling workshops and the making of podcasts became a process of enabling care. It created a space where parents explored possibilities, actively shaped inclusion and functioned within interconnected networks. We discuss the way parents used the research-creation practice and their collective stories to (1) generate and apply present and future images of their child, (2) consciously invest in and appreciate connections, (3) interact with specific intentions, and (4) become activists and go public.