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May 1, 2024Journal of Family Medicine and Primary CareOpen Access

The role of primary care in rare disorders: A qualitative study of parents and patients managing complex vascular anomalies

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Authors

AKAnna M. KerrCBChristine BereitschaftBSBryan A. Sisk

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Kerr et al. (2024) studied this question.

synapsesocial.com/papers/68e6c494b6db643587642bf9https://doi.org/10.4103/jfmpc.jfmpc_1556_23
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1The breadth of primary care: a systematic literature review of its core dimensions2010 · 731 citations
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  3. 3Clinical Characteristics and Management of Vascular Anomalies2004 · 72 citations
  4. 4Communication and the Appraisal of Uncertainty: Exploring Parents’ Communication with Credible Authorities in the Context of Chronic Childhood Illness2017 · 37 citations
  5. 5“It´s incredible how much I´ve had to fight.” Negotiating medical uncertainty in clinical encounters2017 · 47 citations