Mp12-08 the Role of Caregivers’ Self-Efficacy, Preparedness, and Burden on Health-Related Quality of Life in Optimizing Care for Urological Oncology Patients: Preliminary Results of a Prospective Single-Center Study

You have accessJournal of UrologyHealth Services Research: Practice Patterns, Quality of Life and Shared Decision Making I (MP12)1 May 2024MP12-08 THE ROLE OF CAREGIVERS' SELF-EFFICACY, PREPAREDNESS, AND BURDEN ON HEALTH-RELATED QUALITY OF LIFE IN OPTIMIZING CARE FOR UROLOGICAL ONCOLOGY PATIENTS: PRELIMINARY RESULTS OF A PROSPECTIVE SINGLE-CENTER STUDY Ahmet Keles, Burak Tufekci, Alihan Parpucu, Mustafa Kaan Akalin, Meftun Culpan, and Asif Yildirim Ahmet KelesAhmet Keles , Burak TufekciBurak Tufekci , Alihan ParpucuAlihan Parpucu , Mustafa Kaan AkalinMustafa Kaan Akalin , Meftun CulpanMeftun Culpan , and Asif YildirimAsif Yildirim View All Author Informationhttps://doi.org/10.1097/01.JU.0001009376.16371.fb.08AboutPDF ToolsAdd to favoritesDownload CitationsTrack CitationsPermissionsReprints ShareFacebookLinked InTwitterEmail Abstract INTRODUCTION AND OBJECTIVE: In uro-oncology, quality of life has become an outcome as important as survival and effectiveness.This study aimed to investigate the impact of caregiver's burden, preparedness, and self-efficacy of informal caregivers on the quality of life (QoL) of patients with urogenital cancers. METHODS: In this prospective observational study, we enrolled 70 patients during a regularly scheduled patient clinic visit for the treatment of urogenital cancers, along with their dedicated family caregivers. The caregivers participated in the study by completing four validated questionnaires: the Zarit Burden Interview (ZBI), the Burden Scale for Family Caregivers (BSFC), the Caregiver Preparedness Scale (CPS), and the Revised Scale for Caregiving Self-Efficacy (RSCSE). QoL was assessed 90 days after the patient visit using a five-level EuroQol five-dimensional questionnaire (EQ-5D-5L).Correlation analysis using Spearman's rank correlation coefficient was used to explore the relationship between patients' QoL and caregiver's burden, preparedness, and self-efficacy. RESULTS: According to caregiver- and patient-reported outcomes, the ZBI (r = −0.554, p-value < 0.001), BSFC (r = −0.499, p-value < 0.01) and all three domains of the RSCSE (r = −0.796, p<0.001; r = −0.754, p<0.001; r = −0.741, p-value < 0.01; respectively) scores were noted to have a statistically significant negative correlation with the EQ-5D-5L anxiety/depression domain.However, we found a positive relationship between the anxiety/depression domain and CPS scores (r = −0.554, p-value < 0.01). Patients' EQ-Visual Analog Scale scores decreased as caregiver burden increased; however, the higher the self-efficacy in responding to disruptive patient behaviors (SE-RDB) and self-efficacy in controlling upsetting thoughts (SE-CUT), the higher the score. The other correlations were not statistically significant. CONCLUSIONS: Our study found that the QoL and dimension of anxiety/depression in patients with urogenital cancers were negatively affected by the caregiver's burden, insufficient preparedness, and low self-efficacy. We advocate providing comprehensive support for informal caregivers is an integral part of the patient's overall care plan. Source of Funding: None © 2024 by American Urological Association Education and Research, Inc.FiguresReferencesRelatedDetails Volume 211Issue 5SMay 2024Page: e203 Advertisement Copyright & Permissions© 2024 by American Urological Association Education and Research, Inc.Metrics Author Information Ahmet Keles More articles by this author Burak Tufekci More articles by this author Alihan Parpucu More articles by this author Mustafa Kaan Akalin More articles by this author Meftun Culpan More articles by this author Asif Yildirim More articles by this author Expand All Advertisement PDF downloadLoading ...